Have you recently been given a diagnosis of Motor Neurone Disease (MND), or do you know someone who has?
MND describes a group of diseases that affect the nerves (motor neurones) in the brain and spinal cord that tell the muscles what to do. It is not known why this happens and can occur at any age, but tends to more prevalent in people in their 60’s and 70’s. It is a progressive condition where messages from the motor neurones stop reaching the muscles over time, which then weaken and waste away.
MND affects every individual differently but can affect mobility, speech, swallowing and breathing. It progresses at different rates for individuals and although there is not a cure, management of symptoms can help maintain quality of life.
There are aids and adaptations available which can help with some of the effects of MND, and an Occupational Therapist can also provide an assessment to support with this. National and local associations can also provide assistance and guidance with practicalities, such as diet and exercise where applicable, benefits and emotional support.
If you are living with MND or care for someone who is, Healthwatch Essex Information & Signposting Team can give you details about support services and wellbeing activities in your local area. Call us on 0300 500 1895, email at [email protected] or drop us a text on 07712 395 398.
Information & Signposting Lead